The air is
filled with fluttering wings
a cascade
of blue struggling on through
holding in
their hearts such wonderful dreams
of so much
living they'd still love to do
Though eye
can not see nor heart feel their pain
only to
one who listens although the answers are plight
a soul
that searches for sun instead of rain
will
surely make it on life's downward flight
The
suffering is so real, they so often hide
only the
creator knows what they endure
each
little butterfly was created with pride
oh how
they long for a much needed cure
Many wings
fly onward trying their best
to take
what life offers and hold on tight
never able
to explain and never able to rest
each day
they awaken ready for another fight
Take
comfort in knowing each is a worthy soul
God always
cradles them in his loving arms
he gives
them strength and shows them to be bold
he created
them in his image like blue charms
Dewey eyed
and charming they face each day
though the
valleys may be deep with fear and dread
they
flutter their wings and take time to pray
then the
light shines even more from the hills ahead
One can
even light beside you like a sunbeam
in all of
its beauty and glory for a little while
it may
show happiness with a huge gleam
depending
on the master with a hopeful smile
So when a
blue, Addy butterfly flutters on by
it could
be someone you cherish and love
take time
to treasure it and remember why
it's a
heaven sent creation from God above
© Susie
Swanson, 2019
Not
something you all would expect me to post on here but I wrote this as
a tribute and honor to all the Addison Disease sufferers out there
like me since the blue butterfly is a symbol of Addison's disease. I
know this is one of those rare diseases that not even doctors know
enough about to be able to treat it in so many ways.
Recently I
wrote a letter and managed to get my local newspaper to publish it to
bring awareness to Rare disease Day which was on February 28th.
I especially wanted to bring awareness to the medical community and
hope it did some good since I've experienced first hand how hard it
is to get the right kind of treatment after two ER visits last Fall.
If I hadn't carried in my paper work from the National Adrenal
Disease Foundation and gave it to the attending physcians they
wouldn't have known to give me a high dose of an emergency injection
steroids and also in my IV and my organs would have shut down in a
matter of minutes because my cortisol was so low. Steroids are the
lifeline to an Addison patient and we live on them every day and have
to learn how much and what amount it takes to keep our bodies going.
I had never come to know of anyone else in our town or community
that has it till that letter was published. Two more ladies got in
touch with me and that was a God answered prayer for sure. We keep in
touch and support one another now. I have come to know some on
facebook and one in particular and we stay in touch that way. When I
first got diagnosed she introduced me to some facebook groups and I
have learned so much following these brave but awesome people and
feel so blessed more each day to be able to know what's going on with
my body and be able to learn so much.
This is a
very hard disease to live with and hard to explain just what it can
do to our bodies. It's changed my life in ways that I could never
explain. But I feel so blessed that God is walking this path with me
and carrying me when I need him the most. Thank you all for your
patience, support, encouraging words and most of all your prayers.
May God Bless you all. ~Susie~
HUGS!!!
ReplyDeleteOh, Susie- I am so sorry that you have to struggle with a disease like Addisons. How horrible! I will never understand, this side of heaven, why good people need suffer like they do. You are a brave soul, dear heart.
ReplyDeleteI am so glad that you found others that can support you as you live with Addison's. I don't think that anyone that has not suffered with it would understand it enough to be of any real support.
I am keeping you in my prayers and that poem will haunt me, I think. Beautiful and heart-rending. xo Diana
The blue butterfly is a lovely symbol. I am glad you have found support in others. It is so sad that the disease is making things very hard for you. I will lift you up in prayer.
ReplyDeleteSusie, I'm so glad you found some ladies that are familiar with what you're going through and you can help one another through all this. The blue Addy butterfly is beautiful, and what a lovely poem this is. I'm sorry this is such a hard disease to live with, but what a blessing that you have people who understand and to help you along the way. Take care, my dear friend. And I hope you feel better.
ReplyDeletelove, ~Sheri
Susie, I loved your poem. I read it aloud . Poetry has more meaning to me when reading aloud. I love the butterflies. What a wonderful blue color.
ReplyDeleteIt made me feel lifted in spirit when I read that you have made some friends who through suffering the same disease and now can help guide one another . I hope you have comfort in that. Susie , God will be with you each and every moment of this struggle. I pray that He will ease the pain and bad days will get better for you and the others. Sending you big hugs. Blessings to you, my dear friend, love you, xoxo, Susie
Beautiful photo and heartfelt poem, Susie. Thinking of you as you struggle with this disease. I'm glad you have found others to connect to and get support from. I'm sure it must feel quite lonely at times to suffer from a rare disease that is so difficult to treat. Hugs to you.
ReplyDeleteSusie,
ReplyDeleteI didn't know you had Addison Disease. Your poem is so touching and means so much since I know now that the blue butterfly symbolizes this illness. My thoughts and prayers are with you, my friend.
Thank you for your prayers for my son, Susie. He is home now, healing and doing better. It's been an exhausting week, but I'm so thankful he's ok. I am blessed with blog friends like you are always there with comforting and thoughtful words.
ReplyDeletelove, ~Sheri